What are the symptoms of myelofibrosis

What are the symptoms of Myelofibrosis?

While most patients are diagnosed having presented with symptoms, many people experience few or no symptoms at all in the early stages of Myelofibrosis (MF). In fact, patients are often diagnosed after having tests for an unrelated condition. Regardless, not every person has the same combination of symptoms to the same degree of severity.

Resources

MF symptoms video
Click here to watch a short video about understanding your MF symptoms.

Tracking your symptoms

It’s important to monitor how you’re feeling and what symptoms you’re experiencing. This way, if you notice them changing or getting worse, you can tell your Haematologist and explain how they are affecting you on a day-to-day basis.
And if they are getting better, then you will know that your treatment is working. You may want to consider using a pre-prepared form like the MPN-10 Tracker to measure and track your symptoms prior to each visit to your Haematologist.

MPN-10 Tracker

This MPN-10 tracker – developed by world-leading experts in the field – is a useful way of assessing your symptoms.
It will just take a few minutes to fill in every month.

Fill in your name and the date – this will help you track your symptoms over time.
Rate each symptom on a scale of 0 to 10, with 0 meaning you don’t have that symptom and 10 meaning it is the worst imaginable.
Make sure you fill in ALL the categories.
Add up your results to get your total score

Be sure to share your answers with your doctor or other healthcare professionals.