replenishEd Patient Support Program
Even though paroxysmal nocturnal haemoglobinuria (PNH) is a rare disease (affecting approximately 1–9 people per million of the population) and you might not know anyone with the same condition, you’re not alone.1
Starting a new treatment and managing PNH can have challenges. That’s why the replenishEd Patient Support Program, a patient support program initiated and funded by Novartis, is here for you.
Designed with help from other people living with PNH, the Connected – Stronger Together Patient Support Program provides downloadable resources and highly personalised support. This aims to address your unique needs as you start and continue treatment with FABHALTA®▼ (iptacopan). Joining this optional program allows you to access to different types of support, such as nurse phone calls, emails, or text message reminders to take your medication. You can also access tools to record your symptoms and feelings, as well as read tips on how to manage your well-being and find out more about your condition. The mini self-care guides provide further advice on taking care of your physical and emotional health and managing disruptions to your routine.
